Before i start making up excuses for why i've been so neglectful, i'd like to wish you all Merry Christmas! Hope you are all full of turkey, chocolates & alcohol and i hope Santa was kind to you all! He was very kind to me, or should i say my family was! My mum bought me tickets to see JLS on their tour next year, the new Man United away shirt with my future husband (i wish!) Jones on the back, loads of clothes, dvd's, 3ds games, makeup & a ton of other stuff! I also got spoilt by the rest of my family, i got money, more clothes, more makeup & loads of chocolates! We had fun on Christmas morning when my dog decided that she wanted to open everybody's presents as well as her own, ungrateful or what!
Now then, why have i neglected this thing?? I don't know. I have been quite busy for the last two months but apart from that i don't really know why. It's probably because i feel like i don't have much to say & then suddenly 6 months have flown by and i have quite a lot to say!
I've been really busy with the drama group that i go to, we're doing a show at The Lowry in January, so we've had lots of rehearsals leading up to Christmas & we've got more next week. It's only 13 days until the first night of the show, it's come around so fast, feels like yesterday when we got the script for the first time! I'm really nervous but really looking forward to it, i just hope i don't massively fuck up, drive my wheelchair off the stage or get stuck in the curtains, these kinda things happen to me, if they are going to happen to anyone it'll definatly be me.
Crazy things always happen to me, i suppose it just makes my life which would otherwise be a boring and repetitive routine a tad more interesting, everybody likes a little adventure every now and then don't they? The incident which sticks out in my mind is the one which occured at our corner shop. I'll tell you about it because it'll probably make you laugh..at me. Obviously, being in a wheelchair makes the stuff most people take for granted a lot more difficult for me. This includes going into a shop which has a step. I was around 9 years old when this happened, when my friends used to go to our corner shop to buy sweets, i always had to sit outside in my wheelchair and wait for them because the step was too high. One day, i was minding my own business waiting outside the shop & the son of the shop owner came outside to see if i wanted anything, he felt sorry for me because i couldn't go in the shop so he gave me a free bar of chocolate. The next day i went back, hoping for another free bar of chocolate, the man came outside to me again & told me that he was going to build a ramp. I was so excited at the thought that i'd actually be able to go inside the shop instead of looking like somebody just dumped me outside. Around 3 weeks later the ramp was done & i couldn't wait to try it out. I persuaded my mum to give me £5 as this was a huge milestone...i'd never been in the corner shop before, it was a big deal!!! Anyway i got to the shop with my friend & there was the ramp, "WOW" i thought. My friend went up the ramp 1st to open the door & i followed her, all was going well and then suddenly but in slow motion i could see the sky. Yep the ramp was too steep & i went head over wheels, backwards. I was stuck on my back, my legs were up near my chin and i felt like a beetle, probably because i looked like one. It took a few seconds (felt a lot longer) for my friend to realise i was no longer upright, infact i was almost upside down. A few seconds later, the shop owner came to the door, he's a really tall, old, indian man, he didn't look to impressed. He just stood staring at me as if to say "Are you just gonna stay there all day"...well yes, if somebody doesn't bloody help me! Anyway his son came out of the shop & another passerby came and helped to lift my wheelchair up and then got my legs out of the awkward position which they were in. When i got home, my mum was waiting to see what i'd bought from my 1st visit to the shop, when i told her what had happened i thought she was going to collapse from fright. I'd had my spinal surgery only 6 weeks before so the first thing she was worried about was if i'd done any damage to the metal rods in my spine, luckily i was fine, just a slight bump to my head!
We've since found out that a ramp must be 1 foot long for every 1inch. Also, i've never been back in that shop funnily enough.
Sorry for getting distracted by that story, anyway, what else have i been up to, well i've still been going to the football matches at Old Trafford, i witnessed the 6-1 defeat by the noisy neighbours Man City & was in a foul mood for at least a month. I attended the Manchester United annual dinner & had a lovely five course
meal, i met Gary Neville whilst i was there & i also met him a month before this 
at his book signing. I also met Phil Jones & Chris Smalling after being invited to meet them at Francis House Childrens Hospice, i was over the moon when i got the phone call to ask me if i'd like to meet them! Phil Jones, even though he'd only just signed for Manchester United a few months before this had quickly become my favourite player. Seeing him & Chris Smalling walk into the garden of Francis House, i just couldn't stop smiling, they gave us all a Manchester United pendant & signed them and they also signed shirts & had photographs taken, it was a really special day which i'll never forget. My photograph was taken by a Manchester Evening News photographer and a few days later it was in the newspaper! Healthwise i've been good lately, i've had a few stomach bugs and a bit of a cold but nothing too bad (touch wood). My DLA is due to expire in April so the past week has mostly been spent filling in lots of very repetitive pages of questions about my ability to walk (none), how far i can walk before i feel pain (erm, as stated above, i can't walk ATALL!), how often i suffer from falls...(i was tempted to tell them the story about the ramp at the corner shop) and lots of other questions about every aspect of my life, including wiping my arse. I had to get a supporting letter from my consultant about my disease & how it affects me, i recieved a medical report from him last week which should be enough for them to understand my condition. Living with SMA everyday, this probably sounds weird, but i kind of forget how serious my condition is, i have to, if i thought about it everyday i'd spend everyday worrying about what could happen tomorrow, or which muscles i'll still be able to use in the near future, when my next pneumonia will be or whether or not this time next year i'll still be able to eat normally. I can't think about those things everyday, those thoughts do run through my mind mainly at night when i'm in bed & i cannot move atall, that's when i feel most vulnerable. Anyway, the medical report which my consultant sent to me really reminded me in black & white of what my conditon means for me, the words which stuck out at me were "devastating, progressive muscle wasting" and "uncertain future" anybody would find that slighty frightening, even though i have had this disease all my life & have known how serious it is ever since i was old enough to Google it, it's still frightening to read. If you know me then you'll know that 98% of the time, i'm happy & the glass is always half full, 1% of the time i am pissed off because United dropped points & the other 1% is when i'm having a bad day, but don't we all have one of those occasionally?
This post has taken me two nights to type & now i think i'm getting RSI in my wrist! I'm not gonna sign off by saying that i'll update this thing more often because i'll fucking forget. Okay, bye x
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